Sickle Cell Awareness Month
Each September, in recognition of Sickle Cell Awareness Month, Alaafia hosts a series of educational programs and community events dedicated to increasing awareness, improving understanding, and strengthening support for individuals and families affected by Sickle Cell Disease (SCD) and Sickle Cell Trait (SCT).
Throughout the month, participants have opportunities to learn from healthcare professionals, researchers, advocates, individuals living with Sickle Cell Disease, caregivers, and community leaders. These sessions provide practical information, current resources, and meaningful discussions that help individuals better understand the disease, navigate healthcare systems, and advocate for improved care.
Program Goals
Sickle Cell Awareness Month is designed to:
- Increase public awareness of Sickle Cell Disease and Sickle Cell Trait.
- Provide accurate, evidence-based education about genetics, inheritance, prevention, and disease management.
- Empower individuals and families to become informed advocates for their healthcare.
- Connect participants with healthcare, social services, and community resources.
- Promote culturally responsive and equitable healthcare for people living with Sickle Cell Disease.
- Strengthen community partnerships and public awareness throughout Wisconsin and beyond.
Educational Topics
Programs throughout September may include presentations and discussions on:
- Understanding Sickle Cell Disease and Sickle Cell Trait
- Genetic inheritance and family planning
- Living well with Sickle Cell Disease
- Pain management and preventive care
- Mental health and emotional well-being
- Transitioning from pediatric to adult healthcare
- Patient rights and healthcare advocacy
- Working with policymakers to improve Sickle Cell services and legislation
- Domestic and family violence resources for individuals living with Sickle Cell Disease
- Resources and support for LGBTQ+ individuals living with Sickle Cell Disease
- Youth and family support
- Available healthcare, financial, educational, and community resources
- Current research, emerging therapies, and future developments
Weekly Educational Sessions
Each week during September, guest speakers from a variety of professional and lived-experience backgrounds present on topics related to Sickle Cell Disease and Trait.
Speakers may include:
- Healthcare professionals
- Researchers
- Patient advocates
- Adults living with Sickle Cell Disease
- Parents and caregivers
- Community leaders
- Representatives from partner organizations
These sessions provide participants with opportunities to ask questions, share experiences, and connect with others within the Sickle Cell community.
Our Commitment
Alaafia is committed to improving the lives of individuals and families affected by Sickle Cell Disease through education, advocacy, community engagement, healthcare navigation, workforce development, and strategic partnerships.
By increasing awareness and providing accessible resources, we help individuals make informed decisions, strengthen self-advocacy, and build healthier, more supportive communities.
Join Us
Whether you are living with Sickle Cell Disease, have Sickle Cell Trait, care for someone who does, work in healthcare, or simply want to learn more, we invite you to participate in our Sickle Cell Awareness Month programs.
For more information or to register for upcoming events, please contact info@alaafiaafrc.org.