Funded by the Greater Milwaukee Foundation
Alaafia is leading an innovative research initiative designed to deepen our understanding of the daily experiences, challenges, and healthcare needs of individuals living with Sickle Cell Disease (SCD) in Wisconsin. The project seeks to generate meaningful, community-driven data that can inform healthcare practices, improve support services, and enhance quality of life for people affected by SCD.
This study focuses on the relationship between lifestyle, pain management, medication use, healthcare experiences, and overall well-being. By centering the voices of individuals living with SCD, Alaafia aims to identify practical solutions to the unique barriers and challenges this community faces.